Social media is everywhere! It’s a way for all of us to take Action to increase Awareness and Information about myeloma! Over 12 years ago, the IMF began a program to invite leaders to attend ASH and to share their experience. It’s different how patients and caregivers understand complex medical information and while we are absolutely not reporting like the myeloma experts, our perspective is very personal.
The value of peer to peer learning from the global social media platforms with leaders blogging and tweeting, to the leader’s local reports to their group members, community, and healthcare teams is unprecedented!
In fact, you may be interested that on symplur.com (which is a social media analytics company that tracks tweets by hashtags), two of our support group leaders were first and second on Symplur’s “Top 10 by Mentions“ list! That’s patients at ASH having a huge impact and networking with healthcare partners all over the world!
All of the leaders that attended ASH with us tweeted out important stats and their impressions throughout the entire ASH event. My personal thanks to each of them for doing their homework prior to ASH to gear up and be prepared; for managing long days of sitting, focusing, tweeting; and then walking the long halls of the Georgia World Congress Center. At night, they also attended programs and wrote their blogs! Never a moment to spare at ASH!